Charlotte's Neurology Appointment

This week we had many appointments for the girls, and one included a trip to the neurologist for C.

Our pediatrician gave us the referral.  The doctors at the IAC were hesitant to send her to one, but the more I thought about it, the more I wanted to look deeper into C's weak left hand and unique way of running.   Most, including the doctors, have politely brushed off my concern because C hides it so well.   So, I was very glad to be having this appointment, anxious for answers and prepared to provide whatever evidence was needed to convince the specialist that my daughter needed help.  

Thankfully, I didn't have to convince her of anything.  In a matter of minutes, she saw what I was seeing.  The neurologist suspects that C had a stroke at some point, but does compensate very well.  What I didn't think about is that now C is at risk for seizures.   She described what a mild seizure and a very serious seizure might look like, and what to do in each case.   

 It shook me up a little bit because it reminded me that in some ways, Charlotte is still medically fragile.  I forget about her heart defect all. of. the. time.   But it's there.  Challenging and life threatening things have happened to this sweet, gentle little girl.  Seizures can be big or small, frequent or a once in a lifetime event. 

 But I could loose her.  

A year ago I didn't know if her file would ever be released to us.  Nine months ago I didn't think China was going to ever send the necessary paperwork.   Four months ago I held someone in my arms that I didn't even know.  Now she's a part of me like nothing else ever has been.  

My feelings toward families who have medically fragile children or children that have died are much deeper now than they were before.

Children are precious.   

Life is precious.

I'm so thankful for these sweet ones and all that they bring to our family.  I am thankful that I can at least help my daughters in this way, that I can give them good medical care.

Of course, I'm doing my best to pour out so much more upon them.

My little Dolly (as she likes me to call her) will be having a CT scan next week to confirm and determine the severity of her stroke.   Like the neurologist said, we can't undo what happened, but with therapy and support we can help her succeed that much more.

Please pray for calmness for Charlotte as she goes through something very scary for her.  Please pray that the affected areas are minimal.

Thank you, from a very precious little Dolly's slightly worried mama.